Man Who Inspired ALS Ice Bucket Challenge Dies at 46
Man Who Inspired ALS Ice Bucket Challenge Dies at 46
Millions Raised by Ice Bucket Challenge Inspiration Who Lost Battle With ALSCC BY 2.0 Anthony Quintano ALS Ice Bucket Challenge
01 December, 2017, 02:17
The man who inspiried the ALC Ice Bucket Challenge has died following a 14-year battle with the disease.
When he passed the challenge on to others, he chose the ALS Association as a beneficiary because of his connection to Senerchia Jr.
Chris' post reached another man living with ALS - former pro baseball player Pete Frates - and between them they made it go viral.
In his obituary, Senerchia Jr. was remembered as "a fireball" who wasn't afraid to try new things. He was family oriented, generous and always ready to lend a helping hand.
It occurs when specialist nerve cells in the brain and spinal cord stop working properly - and can affect a person's ability to grip, walk, speak, swallow and breathe.
The Ice Bucket Challenge was also originally criticised as a fad rather than a legitimate fundraising effort and those taking part in it merely wanting to be seen participating in the latest trend or a prime example of "slacktivism" - online activism that requires minimal time, effort or meaningful involvement.
He recorded a video of it and sent it to her as a challenge.
The challenge was also briefly revived in the summers of 2015 and 2016, but it was less widespread.
"He worked tirelessly to raise awareness for ALS and was directly responsible for the world-renowned Ice bucket challenge", the obituary read.
Within 30 days of the campaign's beginning, it had raised US$100 million, part of which enabled researchers at the Project MinE, an organization which scours the human genome for clues as to the cause of the disease to identify a gene associated with the development of ALS, potentially leading to newer more effective treatments.
Scores of famous faces, from politicians to reality stars, got on board with Ice Bucket Challenge.
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